Life with a Gtube

Life with a Gtube, even with the changing of the dressings, seems less worrisome. It's not necessarily simpler, since doing the dressing change, on your own, is a bit of a science. You have to do it quickly, and be aware of the little hands that want to explore the area. What makes it easier now, or should I say, who, is that we have a RN (a lovely woman by the name of Barbara), that comes in five times a week for three hours, who looks after Wyatt while mom gets housework done, or pays attention to the middle child, Jude. 

Jude, is unfortunately, typically overlooked. I feel as his mother, he deserves more attention, but it just isn't in me to do so. When Wyatt is having a bad day, it usually means Jude is parked in front of our 'tv' (laptop), and watches his shows until one of two things happen:

1. He has a meltdown, and demands my attention;
2. Dad comes home.
3. 
   

The poor guy is a terrific kid, he is a big helper in the kitchen, and cleans up after himself. BUT, on his bad days, he screams, hits and is honestly, just plain old mean. As his mother and father, we have to keep in mind, that Jude is feeling the  brunt of Wyatt being home. For Aila, it's status quo. She goes off to school, and her routine isn't disrupted. For Jude, everything is thrown out the window once Wyatt is back from the hospital. Jude's routine when Wyatt is in hospital VS when is home, are two completely different routines. It's hard for the little guy, but he's resilient. And tough. As a three year old, Jude is trying to be at his best, but some days, it's just too much for him. Especially when you go from mom being at your side all day, and then the next, her pushing you away, so she can get space to suction his baby brother.

I digress, Wyatt has been doing great since coming home. His gtube site looks great, still no sign of infection. Hopefully it stays that way.

He's been seeing his chiropractor for almost a week now, on a daily basis. His "surprised" look on his face has turned into a more relaxed (normal?) look. I, at first, thought he looked tired, almost weak. But, after discussing with dad, realized that that's how babies are supposed to look - 'not surprised' all the time. He is also babbling more, and his swallowing seems to have improved. We have also heard him 'playing' with his spit... not too sure what that means though. 

We are still awaiting results for his biopsy on his frontalis muscles, and have recently done bloodwork to have our genes sequenced to hopefully discover some kind of mutation, which may tells us what's wrong with Wyatt.