Day 13 at Home

We are nearing that point where we are just waiting for Wyatt to get sick - or worse, have an episode. We are literally in CHEO every two weeks, and we are fast approaching our two week mark being home, tomorrow. In the last two weeks, most parents would have brought their kid into CHEO under the following circumstances, but because of the support we get through CHEO's Champlain Complex Care unit, we have so far avoided it. In the last two weeks Wyatt has:

1. Thrown up blood;
2. Pooped every 4-5 days (he gets half breast milk & formula, so constipation isn't considered normal);
3. Vomit and/or spit up his feed.

After speaking with the most wonderful, Dr.Issa, we fed Wyatt whole yogurt through his gtube line, with prune juice, and we were able to get a poop (BM) out of him within 12 hrs. With that said, he is now going day three of no poop. We shouldn't obsess, I know. It's just poop. But for those of you just tuning in, Wyatt had a gastric tube inserted into his stomach a mere three weeks ago. And don't get me started on his feeds, today he was teething. So, instead of taking 1.20 hr to digest 200 mls of milk, he took 2.5 hours! Poor, little guy has a hard time keeping food down when there is so much saliva coming out of his mouth, and then you have to remember to increase his water flushes, because he's losing so much fluid out of his mouth. It makes my day crazy-busy! 

For example: I just completed a 10k run yesterday, without any training, and I can most definitely conclude that taking care of three kids is akin to training for a 10k run.  I finished the run in  1 hr 7 minutes, about 5 minutes BETTER than my 'trained' times. Had no idea how physically demanding it is to take care of my kids until I ran over that finish line, and realized "Hey - I haven't severely, physically injured myself by running 10k."

Wyatt has also been seeing his Chiropractor, from Synergy Chiropractic and Wellness Center, Dr. Hazel. We have seen some changes in his facial muscles, but it comes and goes. Dad took a week off of work to bring him in every morning, it's very intensive right now. We have also noticed that Wyatt seems to handle his secretions better - but that may be due to the fact he hasn't had a virus in two weeks. With that said, if he's teething; we're suctioning every 10 minutes or so. We cannot directly attribute it to Chiropractic care, but it may be due to his age development, the infantile brain is capable  of amazing, unexplained things. He has also been talking a lot more, both my father and I swear we hear him say Papa today!

Before Chiropractic Care:

After:

Can you see a difference, if so: post a comment in the Comment Section!

On a side note, my father did a little bit of social media work himself - but old' school styles: he talked to his work buddies about our story.

Friends from my dad's days of old in the Air Force have now accumulated well over $1600 in donations!  It still blows my mind how many people want to see Wyatt get better. I would like to send a thank you to everyone who has donated since late April, Howard & Linda Williamson, Jack G McLaughlin, Christian Girard, Doug Dolinski, Keith Kelley, Jasmin Bergeron, Patrick Thomas, Raymond Leclerc, Michel Pilon, Stewart Cormier, George & Rachel Kim, Serge Duguay, Gary Gren, Doug Macisaac, Jennifer Harris, Suzanne Knott, Valerie Keeler, Melissa Daly, Ingo Jobling (Ingo: one donation is enough!!), Natalie Lemieux, Carmen Brisson, Michelle Conner, Sandra Morgan, and last, but not least, Marielle Richard.

Et je ne peux pas oubliée ma grandmaman Miville - merçi merçi merçi. Je t'aime grandmaman, vous etes une sainte! xox 

With some of the donations, we bought a BlueAir Air purifier. This thing is huge. But it works. Trust me. Andrew decided to do some weeding - and one thing led to another, the fire was put out, and the air purifier sucked out all of the smell from the house!