Tuesday 22 April 2014

Wyatt's Case Study

*Insert drum roll sound*

Wyatt's specialists were all finally able to get together today for a Case Study.

3:00 pm - Meeting begins (Staff only)

3:00 to 3:50- Mom and dad wait... mom starts to convince herself they forgot about them waiting in the waiting room.

3:50 - ENT comes walking in wondering where the meeting is...they're in their scrubs. They've come from the Clinic (always busy guys).

4:05 - We're guided into this tiny room, with this TV that buzzes right against our ears to a high-pitch sound. Which everyone listens to for the next 40 minutes.

We were supposed to meet everyone for 15 minutes. That was our window. Everyone stayed. For 40 minutes.

6 Beeper pages later... (ENT mostly...)

Mom and dad leave feeling - wait for it.

Relieved. 

It's rare that I leave CHEO feeling relieved. Usually, I feel defeated, and it's not until I get home that I start to feel like myself again. But this time, it was different.

Andrew and I hold hands on the way home in the van, there is a feeling of satisfaction.

ENT: Decided that Wyatt was to have a disperse of Botox into his masseters, and his salivary glands.

Neuro: Decided that we are to meet in a month's time for a neurological assessment, and he is closely working with Genetics. He is confident that Wyatt has some kind of myopathy of the muscles, but to progress further in his diagnosis, we need a muscle biopsy. Possible local anaesthesia may be visited, to avoid a general anaesthetic.

Geneticist:who is proud of mom and dad as parents for "handling things very well", is going to get the paperwork in order for an exome. We expect an appointment soon.

PED: Dr. Issa will continue to be the hub, and kick butt. (That is a medical term, if you do not hold a medical degree).

Anaesthesia: Will likely not be in direct contact with the parents, but is definitely considering the g-tube procedure. Biggest obstacle: Wyatt needs to be well (not admitted), for at least 6 weeks.

During this time Neurology negated Moebius syndrome, Genetics is awaiting results on Trismus-Pseudocamptodactyly Syndrome, and ENT confirmed that Tongue Tie is in no way a possibility. 

If you read Wyatt's Medical Tests, you will know that TMJ is not an option, as well as, Tetanus, and CP. 

Stay tuned for the next Blog: Pediatric Chiropractor & Acupuncturist!


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