In early April, Wyatt had somehow inserted a small piece of plastic from Jude's John Deere toy into his mouth, and had tried to ingest it. If you really want the details of this event, you can read the previous blog post! Needless to say, he required an emergency intubation, which left him under sedation for over 36 hours. During these 36 hours, Wyatt had some very important tests performed, tests that can only be performed when intubated. Namely, a MRI of his brain, brain stem and jaw. He also had a CT scan done of his jaw, and an eye exam.
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| He's my little superhero in so many ways. |
We had a Case Study done at the end of April, which aligned perfectly with Wyatt’s emergency intubation. It took Dr.Issa and Erin Alcaide, our Nurse Coordinator over four months to ensure this meeting of all Wyatt's specialists came to fruition. At his meeting there was his Geneticist, Dr. Graham, his Neurologist, Dr. McMillan, his Anesthesiologist, Dr. Corvo, his Speech Pathologist, Laurice Henry, his Plastic Surgeon, Dr. Phillips, one his ENT doctors, Dr. Barklay, and one of his dentists, Dr. Luden. A lot of names to remember... now just try organizing a day on their schedules where they can all get together and discuss one client!
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| Feeling Patriotic. |
The original intention of this meeting was to decide, or should we say, convince Dr. Corvo, that Wyatt required intubation to get the MRI done of his brain. He hadn't had one since he was days old, and any doctor will tell you, a baby's brain changes in leaps and bounds in the first year. Instead, this meeting was to discuss the findings of the tests performed during Wyatt's intubation from his event in April.
Drum rollllll, please.
Everything came out normal.
Gasp!
Next step was to get a mitochondrial DNA test with a muscle specimen, which we had from Wyatt’s frontalis muscle biopsy in May 2014. Unfortunately, a series of events occurred and Wyatt’s muscle specimen never made it to the lab in a timely fashion. So, now we are once again left waiting. Ironically, back to where we were in April: needing a meeting with Dr. Corvo, to convince her Wyatt needs to go under to get the muscle specimen, and have three neurological tests, namely a Evoke Potentials (EPs), which in turn branches out into three types of tests. We tried to have Wyatt complete one of the three while awake and let me tell you, not a happy camper. You try having gunk put in your hair with wires hanging everywhere, with big, clunky ear phones put over your head. Not comfortable.
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| Gardening with his big brother. |
So, we find ourselves for the most part, enjoying spring with all of the good and bad weather it brings. Wyatt loves to feel the rain fall onto his face, and wear his boots in wet weather. He loves to go down his slide, and play in the earth of our gardens. On the really nice days, we can even play in our little pool sometimes, although he seems to be content with throwing things into it. All in all, he’s a pretty normal 23 month old!
Except when he puts things in his mouth. I have a mini-heart-attack. Every. Single. Time. |
| Don't worry mom, it's non-toxic! |
